I’ve got some news to share and I apologise for the impersonal nature of this communication. Some of you have kindly asked about my health over recent months and I have given partial and non-committal answers. I haven’t been that well, and have undergone many tests and scans and have not had clarity until very recently as to what is going on.
The bottom line is that I’m no longer NED (No Evidence of Disease). My cancer is back. There is clear evidence of cancer growing again in my left lung and pleura. I have suspected this for some time as I have been unable to shake symptoms, such as back and chest pains that have grown more severe, a cough that will not go away, and increasing breathlessness after minor exertion such as walking up the stairs in our house.
It has been a slow and detailed process to reach a confident diagnosis. I’ve had multiple CT scans, a PET scan, blood tests, and a lung biopsy taken under CT. All this has confirmed that the original cancer has progressed in the same area of the left lung and pleura.
The diagnosis was not a surprise, but it has been hard to take. I’ve enjoyed more than three years without chemo and I’ve been enjoying a pretty ‘normal’ life. With a phone call from the oncologist, all that has changed, and I have once again become a cancer patient.
I am very grateful to God for the availability of new drugs that target my cancer sub-type: ALK. When I was first diagnosed, these types of treatments were only just being developed. In fact, Fiona and I both lobbied the PBAC to have these drugs available in Australia and placed on the PBS to make them affordable to people. I have now been on one of these targeted oral chemotherapies for a few weeks. The regime is completely different to my previous four years of intravenous chemo. I take two lots of four tablets every day. The drug is a targeted therapy. It is a new technology, developed since I was first diagnosed. It would have cost us $100ks, but is now available on the PBS for less than $40 a month.
We don’t know whether or how well it will work, but our prayer is that God will use this treatment to give me many more years to come. There is initial evidence that it is doing something as the pains in my chest aren’t as severe, but there is a long road ahead. We know some people who have done really well on this treatment—some who, like me, were given months to live, but have been no evidence of disease or contained disease for years now.
It will take a little while to get used to this new regime and to manage the impact of this treatment. The side effects are becoming more obvious. The main impact so far has been with swelling in my feet and ankles, myalgia in my legs, fatigue, and photosensitivity— hence my new hats! We will need to monitor the impact on heart, liver and kidneys. There will be regular visits to specialists, blood tests, scans, and more. I will need to monitor my energy levels and work out my capacity for various tasks and ministries.
If you are one who prays, then I ask you to pray: for healing; for the treatment to be really effective; for the ability to cope with the ongoing chronic nature of things; for our mental health—that we will trust God and not get too down; for Fiona who has asked for patience; for our love and kindness towards each other as we process life together through different lenses; for our children—who are older now, but have strong memories of last time.
There will be much more to say, we will need encouragement, prayers and support on this journey. We know God is with us, loves us, and will never leave nor forsake us. God, in his mercy, listened to the prayers of so many in 2011/12 as people pleaded with God to extend my life. My hope is that God will grant me many more years in his service. So please join us in prayer.
Feel free to get in touch, but appreciate that there is a lot going on at the moment and it might take a little while to get back to some of you.